Hi loves! My appointment today didn't really get me any solid, concrete answers about what may come next. What I have learned throughout these past couple months is that every case is different. Every case is treated based on the individual patient. And because of that, there is no concrete plan that they pull out and show you.
We talked about my case and went over some of the initial thoughts, but we do not have a solid plan yet. I have to get my second opinion at the Seattle Cancer Care Alliance (SCCA) before we decide what to do. There is also a breast cancer forum (not sure if they do this for other cases) that the oncologists, surgeons, breast care advocates, geneticist, etc. get together at St. Peter's to review cases in our area that may be a little different. Your case has to be put together and presented to the group, where they will then discuss what they believe their best plan of action for treatment would be. I have requested that my case be discussed, since they are still calling it unique. Once my SCCA opinion comes back, then we will go forward with asking for that opinion. I'm extremely interested to see how that goes. (As a side note, I have decided that I do want my case to be submitted for research. There are a number of studies that occur for breast cancer and you can elect to have your case released for the studies. I will definitely be doing this. How awesome if they could learn something from MY case!!)
I can say though that there was NO discussion of chemotherapy today--the word didn't even come up. And I am so grateful for that!! I am not crossing it off the list completely because, like I said before, I am just afraid of the other shoe to drop. I don't want to be shocked if somehow that comes up, but I don't think it will.
So...nothing new to report. I still have some things that I need to do before I know what comes next. The Land of Unknowns continues......
On another note, my physical therapy appointment today went pretty well. I was able to do more this week than I could do last week. It is not easy and I am by no means close to being able to do the things I could do before, but I'm willing to put in the work to get there. I never realized how this would affect even the smallest aspects of my life (like being unable to flush the toilet without pain, wash my own hair, get a cup out of the cupboard, pull milk out of the refrigerator, etc.). It has been a tough adjustment and realization, but I have no other option than to deal with it. I'm just wanting to feel normal again. They always say slow and steady wins the race, right? Well, it may take a long time but it has to get better!!
Thanks for all of your love today!!
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